The Canadian Movement Disorder Group


Parkinson's "Plus" Resources

Disorder

Country

Resource

Contact  Person

Address

Phone /  Email / WWW. address

 

 

 

 

 

 

Shy-Drager Syndrome

 

Email based support group for Shy-Drager
Syndrome/Multiple System Atrophy.

 People may subscribe online by going
to
http://www.egroups.com/group/shydrager

or alternatively  send
an email to
shydrager-subscribe@egroups.com

USA

Shy-Drager Syndrome/Multiple System Atrophy Support Group Inc
(SDS/MSA Support Group Inc.)
 

Contact: Don Summers, President

Email : Don.summers@shy-drager.org


Home Page: http://www.shy-drager.org

P.O Box 279

Coupland, TX. 78615

U.S.A.

Phone: 1-866-SDS-4999 or 1-866-SDS-5999 both Toll Free
Fax: 512-251-3315

 

 

 

 

 

 

Progressive

 Supranuclear

Palsy

 

Canada

NPF Center for Excellence

Contact:

Janice Stober

c/o Dr. Mark Guttman 377 Church Street, Suite 407 Markham,  Ontario L6B1A1

TEL:  (905) 472-7082

USA

The Society for Progressive  Supranuclear Palsy

. The goal of this website is to bring current information on  progressive supranuclear palsy (PSP) to persons  with PSP, their families, and their  caregivers.

Contact

Director

Ellen Pam Katz

Woodholme Medical Bldg., Ste. #515, 1838 Greene Tree Road
Baltimore, MD 21208
USA

TEL: 1-800-457-4777

TEL: (410) 486-3330
FAX: (410) 486-4283

Email: SPSP@erols.com

Web Site: http://www.psp.org

 

Official Newsletter of the Society for  Progressive Supranuclear Palsy, Inc. (SPSP)

Online back copies Available

 

Woodholme Medical Bldg., Ste. #515, 1838 Greene Tree Road
Baltimore, MD 21208
USA

 

Web Site:

http://www.psp.org/pspadvocate/ 

Europe

European Association of Progressive  Supranuclear Palsy

 

Wappenham
Towchester, Northants NN1285Q
UK

TEL: (44) 1327-860-299
FAX: (44) 1327-860-923

UNITED KINGDOM

PSP Association

 

22 Upper Woburn Place
London WC1H 0RA, England

TEL: (44)-1713-833-513

Interactive site with PSP chat Line

PSP WEBFORUM

 

 

 

 

 

 

Multiple System Atrophy

       

http://www.parkinson.org/atrophy.htm

www.alyshia.com/opca

http://www.emedicine.com/NEURO/topic28 2.htm

 
 

Other Rare Disease Links

USA

NIH's Office of Rare Diseases Web site

 

 

http://rarediseases.info.nih.gov/

 

 

 

 

 

 

See also Parkinson's Resources

See also Ataxia Resources