The Canadian Movement Disorder Group
Disorder |
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Resource |
Contact Person |
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Phone / Email / WWW. address |
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Shy-Drager Syndrome |
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Email based support group for Shy-Drager |
People may subscribe online by going or alternatively send |
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USA |
Shy-Drager Syndrome/Multiple System Atrophy Support Group Inc |
Contact: Don Summers, President Email : |
P.O Box 279 Coupland, TX. 78615 U.S.A. |
Phone: 1-866-SDS-4999 or 1-866-SDS-5999 both Toll Free |
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Progressive Supranuclear Palsy
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Canada |
NPF Center for Excellence |
Contact: Janice Stober |
c/o Dr. Mark Guttman 377 Church Street, Suite 407 Markham, Ontario L6B1A1 |
TEL: (905) 472-7082 |
USA |
The Society for Progressive Supranuclear Palsy . The goal of this website is to bring current information on progressive supranuclear palsy (PSP) to persons with PSP, their families, and their caregivers. |
Contact Director Ellen Pam Katz |
Woodholme Medical Bldg., Ste. #515, 1838 Greene Tree Road |
TEL: 1-800-457-4777 TEL: (410) 486-3330 Email: SPSP@erols.com Web Site: http://www.psp.org |
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Official Newsletter of the Society for Progressive Supranuclear Palsy, Inc. (SPSP) Online back copies Available |
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Woodholme Medical Bldg., Ste. #515, 1838 Greene Tree Road |
Web Site: |
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Europe |
European Association of Progressive Supranuclear Palsy |
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Wappenham |
TEL: (44) 1327-860-299 |
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UNITED KINGDOM |
PSP Association |
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22 Upper Woburn Place |
TEL: (44)-1713-833-513 |
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Interactive site with PSP chat Line |
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Multiple System Atrophy |
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Other Rare Disease Links |
USA |
NIH's Office of Rare Diseases Web site |
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See also Parkinson's ResourcesSee also Ataxia Resources